Although my husband, Seth, and I had never met anyone with Xia-Gibbs Syndrome before Emmett's diagnosis, we did intimately know people who faced challenges in life and we loved them unconditionally. My first experience with someone who had a physical impairment was with my dad. He was severely injured in an accident as a toddler, which left him with only two fingers and a thumb. Although he may have looked strange to others, he was just my dad and he learned how to do just about anything, with very few limitations. I think that by seeing what my dad had overcome, it helped me realize that you shouldn't put limitations on people, regardless of their disability or diagnosis.
When I met Seth, I quickly learned that he had a twin brother, Nathan. He was mentally impaired and epileptic, as the result of a childhood illness. Although Nathan had his challenges, his family treated him as an equal and had high expectations of him. He was a hard worker and had a child-like spirit that could always brighten your day. I only knew Nathan for a short time before he passed away, but I am thankful that I got to know him and it gives me hope that Emmett will be happy and accomplish many things, even if it isn't what others perceive as normal. I truly believe that having Nathan as a part of the family, helped prepare us for Emmett.I'm sure that my dad sometimes wondered why he had to lose his fingers and I know that Seth has wondered why his brother had to get sick. No one truly knows why these things happen, but I do know that these circumstances did help prepare us for our journey with Emmett.
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